Children with FASD playing with sensory spaghetti

Parliament

To do list for the new Government

Dear Prime Minister, here’s your to do list

National FASD has written repeatedly to the Prime Minister and Health and Social Care Secretary outlining key steps needed on alcohol, pregnancy and FASD if they are to meet their goals regarding prevention and wellbeing. In October 2026 we contacted all committee chairs, Goverment and more dozens more MPs. We also regularly provide input into ongoing reviews. You can see some of those responses here. We couldn’t do any of this without the amazing community we are honoured to help represent.

Letter (PM) thumbnail

See our 2024 letter to the PM here:

Letter (Health secretary) thumbnail

See our 2024 letter to the Health and Social Care Secretary here:

Health and Social Care inquiry on the prevention of harm from alcohol

On 6 February 2024, National FASD’s Chief Executive provided oral evidence to the Health and Social Care committee about the prevention of harm from alcohol exposed pregnancies and the prevention of further harm from undiagnosed and unrecognised FASD.  Some excerpts are below. 

Much of the important work in the House of Commons is done through Select Committees, which examine issues in great depth and prepare reports which are often influential in government policy making.

The key committees for FASD are

MPs can ask questions at departmental question times, and also send written questions to Ministers. They are also able to organise debates on different topics. These are all recorded in Hansard – the written record of Parliament.

CONTACT YOUR MP

You can contact your MP via email, regular post, Facebook, Instagram and/or twitter and let them know FASD matters to you and ask where they stand on FASD.

How to write to your MP about FASD (Sept 2026)

ADDITIONAL INFORMATION

NICE Quality Standard on FASD (2022)

DHSC FASD Health Needs Assessment for England (2021)

Our Forgotten Children

Report from a roundtable discussion with FASD stakeholders, co-chaired by Professor Sheila the Baroness Hollins and Mr Bill Esterson, MP in the Houses of Parliament on 23 May 2018

Hear Our Voices

FASD Stakeholders Share Their Experiences With Policy Makers. Drawing on experiences of more than 50 individuals and families affected by FASD.

Overview of FASD Policy Debate on Alcohol Harm

2 February 2017

KEY FACTS/MESSAGES

This is a critical time to demonstrate political will as key reviews are underway.

The Cost of Inaction on FASD

The UK is spending £9.2 billion per year on FASD – our report shows there is a better way.

Most ICBs and NHS Trusts are not taking action on FASD.

Source: Popova et. al

The UK has the 4th highest rates of alcohol use in pregnancy

Source: Popova et. al

FASD affects 2-4%

A gold-standard study in Salford showed that FASD may affect more than autism.

POSSIBLE TWEETS/SOCIAL MEDIA POSTS

You can tag policymakers in social media.

I stand with those with Foetal Alcohol Spectrum Disorders and the families and professionals supporting them. People with FASD have a right to diagnosis and lifelong support for their neurodevelopmental disability.  #FASD

I support healthy pregnancies through increased public awareness of the risks of alcohol in pregnancy. #FASD

National FASD does not endorse any particular political party. 

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