National FASD has written to the new Prime Minister and Health and Social Care Secretary outlining key steps needed on alcohol, pregnancy and FASD if they are to meet their goals regarding prevention and wellbeing.
On 6 February 2024, National FASD’s Chief Executive provided oral evidence to the Health and Social Care committee about the prevention of harm from alcohol exposed pregnancies and the prevention of further harm from undiagnosed and unrecognised FASD. Some excerpts are below.
The key committees for FASD are
In addition, there is an All Party Group on FASD, chaired by Bill Esterson MP. All Party Groups are made up of MPs from many different parties who work together on one particular topic they are interested in. They raise awareness with other MPs and help organisation like NOFAS and other stakeholders to raise FASD issues in Parliament and with government.
MPs can ask questions at departmental question times, and also send written questions to Ministers. They are also able to organise debates on different topics. These are all recorded in Hansard – the written record of Parliament.
You can contact your MP via email, regular post, Facebook, Instagram and/or twitter and let them know FASD matters to you and ask where they stand on FASD.
Report from a roundtable discussion with FASD stakeholders, co-chaired by Professor Sheila the Baroness Hollins and Mr Bill Esterson, MP in the Houses of Parliament on 23 May 2018
Report from a roundtable discussion with FASD stakeholders, co-chaired by Professor Sheila the Baroness Hollins and Mr Bill Esterson, MP in the Houses of Parliament on 23 May 2018
FASD Stakeholders Share Their Experiences With Policy Makers. Drawing on experiences of more than 50 individuals and families affected by FASD.
2 February 2017
This is a critical time to demonstrate political will as the Department of Health, NICE and Scottish SIGN are taking action on FASD.
Source: Popova et. al
Source: CANFASD
Source: McQuire et. al
78% do not provide services for diagnosing FASD in children; 91% don’t provide services for diagnosing adults. Source: NOFAS-UK
You can tag policymakers in social media.
I stand with those with Foetal Alcohol Spectrum Disorders and the families and professionals supporting them. People with FASD have a right to diagnosis and lifelong support for their neurodevelopmental disability. #FASD
I support healthy pregnancies through increased public awareness of the risks of alcohol in pregnancy. #FASD
National FASD does not endorse any particular political party.
The National Organisation for FASD, The Priory, High Street
Ware, Hertfordshire. SG12 9AL
England
Helpline: 0208 458 5951