Also in this section:
Scott joined us as our Social Media Co-Ordinator in 2021, and is responsible for aiding our social media efforts, with a focus on our Prevent project. He brings a background in agency and in-house content marketing to the team.
As the son of a long-time researcher in the field, Scott is fueled by a personal connection to the project of spreading FASD education, awareness and support.
Away from his laptop, Scott enjoys working on and driving his classic Mini (mostly working on) or delving into a good book.
Joanna Buckard is a specialist FASD trainer and Health and Social Care Lecturer and has been working within the FASD field for 16 years and within the health, social and education sector for 25 years. She founded Red Balloon Training in 2008 to deliver specialist FASD training and consultancy to health, social care and education professionals and has delivered bespoke training and consultancy throughout the UK and Channel Islands. Joanna joined the staff in 2020 and has been consulting on National FASD projects over the last 13 years including speaking at conferences, delivering training, writing FASD booklets for Midwives and GPs. She has taken part in and consulted on a National FASD film and the awareness raising Pregnant Pause events. Joanna has presented research on FASD nationally and internationally and has also spoken in parliament as part of the APPG on FASD. She has been on the steering group for an FASD parenting course. Joanna has delivered all the training for the Preventing alcohol exposed pregnancies project for GMHSCP. Joanna was interviewed about FASD on Sky news and has also written a book chapter due to be published later in the year.
Sandra Ionno Butcher is Chief Executive of National FASD. Sandy joined the organisation in January 2017. She has nearly 30 years of campaigning, fund-raising, media and organisational experience, working with diverse networks to create positive change in public policy. In her prior position, she served as executive director of the international Pugwash Conferences on Science and World Affairs, recipients of the 1995 Nobel Peace Prize. Most of her career has focused on the intersect of science, social responsibility and policy. Working with the Trustees, Sandy has been overseeing a realignment and expansion of the organisation’s projects. She works with stakeholders, experts, the media and policy makers to promote greater awareness of and support for those with FASD.
Sandy is mum to a teen with FASD. She and her husband are co-founders of the Hertfordshire FASD Support Network (previously the E. Hertfordshire and Area FASD Support Network). They raise awareness through a widely read blog – FASDLearningWithHope.wordpress.com. Sandy is a lay member of the NICE Quality Standard on FASD Specialist Committee. She tweets at @SB_FASD.
Elizabeth has served as National FASD’s helpline advisor for approximately 12 years. In this capacity, she has helped thousands of people with FASD, their families and professionals seeking insight to access additional resources and support.
Sue has joined National FASD as Executive Assistant/Office Manager in May 2021; a time when the organisation is growing. During her early career as a civil servant she worked throughout the Benefits Agency/Jobcentre as a benefits specialist before transferring to OFSTED. For many years she managed the daily running of a successful family business. In more recent years Sue has been manager of a busy charity shop, raising funds for a local hospice.
In 2012 she became a foster carer alongside her husband; they are long-term carers for twin boys with FASD. During the past 9 years she has advocated for FASD in Herts and is Club Co-ordinator of the Hertfordshire & Area FASD Support Network.
National FASD is honoured to work with innovative and talented consultants on a range of projects.
Flis is the creative director for the FASD song project.
Brian is helping us develop learning resources for the PreventFASD and other resources for the Me and My FASD project.
Brian is also a member of the Experts Committee, see below.
Mia handles our bookkeeping and liaises with our accountants.
A trailblazer in the FASD field in the UK, Susan founded NOFAS-UK in 2003 and served as executive director until she retired in 2016. Prior to setting up the charity, Susan was an executive producer and freelancer for Midlantic films, where her work included the Ricky Lake Show, the Oprah Winfrey show and Channel 4.
Michael Attwell is an independent British television producer / director and was a senior commissioning editor at Channel 4, BBC Television, and then Channel 5. He is also a former chairman of the British Academy of Film and Television Arts (BAFTA), which confers British Academy Awards. He is chairman of the independent media production company MAP TV.
He became the first chairman of NOFAS-UK when it was founded in 2003 by Honorary Life President Susan Fleisher. In 2008, he steered NOFAS-UK through the complex process of merging with MENCAP to help keep the organisation afloat. In [20??], by mutual agreement, it was felt NOFAS-UK could stand on its own feet again, and it became once more an independent charity, now known as National FASD. He stood down as chairman in 2019 but remains a trustee.
Until 2019 he was also a trustee of Topsy UK, a charity dedicated to supporting poor rural communities in South Africa, particularly in areas affected by HIV/Aids, and focussing especially on orphans and vulnerable children.
Luke Bradford has over 20 years experience working in media and is now a writer & director for film and television drama. Luke has filmed in over 30 countries, worked with diverse cultures and witnessed some extremes of life. These experiences and a passion for social awareness have shaped his storytelling – bold, surprising narratives that leave audiences thinking and wanting more.
Tania Griffiths Queens Counsel was the first female member of Exchange Chambers, Liverpool. She is also a Recorder (part time judge) and is responsible for issues of equality and diversity within Chambers. She has professional and personal experience of neurodiversity from working within the Justice sector where neurodiverse people are significantly overrepresented and as an adopter she has experience of FASD/ADHD/ASD and a range of educational and other needs. She is part of the award-winning pro-bono team within Chambers providing legal support to families for The National Autistic Society’s Education Rights Service including free legal representation before the Special Educational Needs Tribunal and is currently working on building similar initiatives with the ADHD Foundation. She is very familiar with the educational needs of children with and legal issues relating to EHCPs, SEND, Social Care and accessing support with employment issues through Access to Work. She is passionate about creating a positive environment in which neurodiversity and the special gifts it brings can be celebrated rather than endured.
Stuart spent nearly 25 years in international telecoms, working in many areas, including hardware and software development, operations and project and programme management. He was Chair of Bromley Mencap from 1990-2007 and guided its development to a well-respected organisation, campaigning for the rights of people with disabilities and providing a wide range of services. He stepped down as a trustee in 2017. From 2000-10 he was a trustee of the Royal Mencap Society, sitting on the Finance Committee and chairing the Governance Committee. He represented the trustees on the Board of Northern Ireland Mencap. He has been involved with National FASD (then-NOFAS-UK) since around 2012.
Now semi-retired, Stuart now divides his time between magic (he’s a semi-pro magician and an Associate of the Inner Magic Circle), music (he plays the church organ and saxophone), and tutoring maths and physics to GCSE and ‘A’ level students.
Kevin Price is a creative and business leader in the arts and has been BAFTA’s Chief Operating Officer for the past 19 years. During that time, BAFTA has evolved as an integral organisation in the UK’s Film, Games and Television industries, and now operates globally. Kevin has led on strategy, finance, business, corporate governance, communications and charity outreach for BAFTA, the UK’s premier organisation promoting excellence in the art forms of the moving image. He also chairs the BAFTA albert Consortium, the group leading on carbon reduction and sustainability for the UK Television industry, is a former Board member of Film London and a current Board Member of the Creative Diversity Network. Before joining BAFTA, Kevin was Commercial Director for the international examinations board Trinity College London, he qualified as a chartered accountant in 1990 and has a degree in Music.
Nikki Pasek MBE brings more than 20 years’ experience working in local government. During that time, she has worked in both strategic and operational roles focused on developing services to support local communities and businesses. She has significant Board level experience having held positions as a Chair, Non-Executive Director and Trustee. She has a well-developed network having worked closely with a number of national organisations and stakeholders during her career. Nikki was awarded an MBE in recognition of her service to local communities and won the Guardian’s Public Servant of the Year Award for her work.
Rev Prof Gina Radford is former deputy chief medical officer for England. She currently serves as part-time vicar in Devon. She has been advising the Church of England nationally and Exeter Diocese on their response to COVID-19 and has been working with government on specific aspects of its response. As Deputy Chief Medical Officer, she provided public health advice to Government Ministers, policy officials and a range of national and international groups and individuals. She covered the full spectrum of public health but had a particular focus on Non-Communicable Diseases, including development of strategies such as a Childhood Obesity Strategy, Tobacco, Alcohol, Rare Diseases and Work and Health. While Deputy CMO, she convened a series of meetings on FASD. She has been Chair of a large number of committees nationally including a Public Health Advisory Committee for the National Institute of Health and Clinical Excellence (NICE). She also has experience as a trainer of public health professionals, lecturer at undergraduate and postgraduate levels and as an assessor of Medical Schools’ Undergraduate courses.
Mrs Róisín Reynolds has worked in the drug and alcohol field since the early 90s in both clinical and managerial roles. During this time she also worked as a reviewer for the Health Care Commission and has delivered the RCGP Part 1 and 2 – Working with Drug Users in primary care in venues across the North West. Róisín has also facilitated workshops at several national conferences. Her current role as Senior Advisor for Alcohol Exposed Pregnancies at the Greater Manchester Health & Social Care Partnership, is to lead on an initial 2 year ‘proof of concept’ programme to reduce alcohol exposed pregnancies and progress towards and ambition of ending new cases of Foetal Alcohol Spectrum Disorder. She is a member of the NICE specialist committee for the FASD quality standards and has been involved in the development of the very successful Drymester campaign as part of her current role. https://www.drymester.org.uk/
(advising the Seashell Trust/National FASD partnership project funded by the Department of Health)
Carolyn has worked in education for nearly 25 years in early years, primary and secondary school settings. She has researched early years practice and educational support for children and young people with FASD and published widely in this area. She has qualifications in early years practice, special and inclusive education, research practice, teaching adults in further and higher education and research supervision. She is a Churchill Early Years Prevention and Intervention Fellow, a Fellow of the Higher Education Academy, an associate staff member at the Champion Early Intervention Centre, NZ an Editorial Board member of Infants and Young Children and a co-convenor of the Social Justice Special Interest Group for the British Education Research Association (BERA).
See staff listings above.
See staff listings above.
Jan is birth mum to Rossi who is a young adult and has FASD. She has been a member of the EU Birth Mums group since its inception and the FASD UK Facebook group for longer. She believes it’s important to provide a voice for so many birth mothers who are struggling and believes education will change the future of FASD and the perspective of those who think only certain groups are responsible. Having taken on training with IPSEA she now strives help those who find it difficult to help themselves.
Cassie is a Highly Specialist Clinical Psychologist who is founder and director of The Centre for FASD (based in Suffolk), a multi-professional service, providing full FASD assessment, diagnosis, and post diagnostic support for children and their families.
Sharon is founder of Much Laughter: Stand Up for FASD. She is an adoptive mum of five young adults with FASD and a former foster carer. She advises local agencies and regularly conducts trainings on FASD. She’s been involved in raising awareness of FASD for 15 years including in national media.
Michelle is the Head of Outreach Services at Seashell Trust a national Centre of Excellence in the provision of services and support to children and young people with a wide range of complex communication difficulties. Her background is as a qualified teacher of Deafblindness (MSI). She has over 20 years of experience in this specialist field. She has worked at both an operational and strategic level within a range of settings including LA maintained schools, LA sensory service, university, independent and specialist organisations.
Susan McGrail is mother to a 13-year old with FASD, a foster carer and is founder of FASD Greater Manchester. She also is on the steering group and speaking team lead for the Parents and Carers Together Stockport.
Raja is an Adult Learning Disability Consultant Psychiatrist for Surrey and Border’s Partnership NHS Foundation Trust, with interest in the management of developmental disorders across the lifespan. In September 2009 he started the first NHS based specialist Fetal Alcohol Spectrum Disorders behavioural clinic. Dr Mukherjee completed his PhD on the subject of Fetal Alcohol Syndrome in 2014. He acted as an invited advisor to the BMA board of science, the Department of Health and the World Health Organisation on the subject of FASD. Dr Mukherjee is a member of the NICE quality standards group for FASD. He is currently the UK representative to a NIH sponsored initiative to consider the research criteria for FASD. He is currently Clinical Lead for Adult neurodevelopmental services provided by Surrey and Borders including Adult ASD and ADHD services across Surrey, Hampshire and Portsmouth. He is a an executive committee member of the RCPsych SIG on neurodevelopmental disorders.
Brian is a trained secondary teacher who is now an independent consultant and trainer on supporting vulnerable and traumatised people throughout the UK and those that support them. Brian has been a Local Authority foster carer for over 25 years. Alongside his wife they have been the Special Guardians of three girls that they previously looked after and continue to provide long term foster placements. They live with three young people diagnosed as having been affected by pre-natal alcohol use, currently aged 21, 18 & 12. Brian has been involved in working in the FASD field for 15 years. He has been Virtual School Head in two English Local Authorities, has worked on numerous national educational pilots as well as with a number of national charities and voluntary organisations.
Inyang is a Consultant Neurodevelopmental Paediatrician at the East and North Hertfordshire NHS Trust. She has a special interest in FASD and carries out diagnostic assessments for children with suspected FASD. She previously chaired the healthcare professionals’ forum on FASD and leads the ADHD service at the East and North Hertfordshire NHS Trust. She carries out regular training on FASD and is a member of the NICE Quality Standard on FASD Specialist Committee.
(advising the Seashell Trust/National FASD partnership project funded by the Department of Health)