The NICE Quality Standard on FASD emphasises the importance that every person with FASD has a continuing management plan.
Statement 5 says “Children and young people with a diagnosis of fetal alcohol spectrum disorder (FASD) have a management plan to address their needs.” It gives the following rationale:
“An individualised management plan sets out the intervention and support needs identified during assessment and diagnosis of FASD. The plan signposts the child or young person with FASD and their family to resources and services. It covers the basic and immediate needs of the child or young person after assessment as well as their long-term needs. Because FASD has lifelong effects, a staged management plan may be needed to anticipate upcoming problems at planned intervals and revision should be considered at all transition stages in the person’s life. A management plan also helps people with FASD, their families, carers and service providers to understand and address the associated challenges. The plan helps to coordinate care across a range of healthcare professionals, as well as education and social services, and improves outcomes.”
Unfortunately this part of the NICE Quality Standard is too often ignored. But it can be used to push for local services and support. The Government repeatedly has stated it expects local ICBs to follow NICE QS 204.
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