National FASD, along with the sister organisations in the FASD UK Alliance, helps to raise the voices of those with FASD and their families. We believe it can be empowering to take some control of a difficult situation by ensuring that the next generations will find life easier. We believe this is a key element of wellbeing.
Whether it’s through social media, attendance at policy events, writing to MPs, speaking to the media, setting up a local support group, or advocating for a loved one in meetings with schools, social care, employers, the justice system and more – there are many ways to have impact. There are tips on how to do this elsewhere on this website.
If you are prepared and armed with the facts, every conversation that you have with a skeptical friend, family member or professional is a part of the change that is coming. Own your part in that change and stand tall.
People with lived experience, sharing their truths, has been and continues to be a key part of the change that is happening all across the UK. For more information see the policy section of this website.
Ahead of the 4 July election, we have created a draft letter for you to adapt and use to ask your parliamentary candidates where they stand on raising awareness of alcohol in pregnancy and supporting people with FASD. You can find your candidates here via the WhoCanIVoteFor website.
At the National Organisation for FASD, we’ve developed a booklet intended for parents, caregivers, and guardians to complete and provide to professionals. Our primary objective is to simplify the advocacy process for your child. This fillable PDF booklet can be personalised and saved – it serves as a valuable tool for parents and carers to individually tailor with information about their young person, enabling professionals to gain a deeper understanding of the child and their diagnosis. We trust that this booklet, backed by the authority of our national organisation, will empower organisations supporting your young person to provide essential assistance and adjustments needed for your young person’s success.
In 2019 FASD UK Alliance groups, including National FASD, joined together to create a publication, “Hear Our Voices: FASD Stakeholders Share Their Experiences with Policy Makers.” Drawing on experiences of more than 50 individuals and families affected by FASD, this publication jointly produced by the FASD UK Alliance was instrumental in helping policy makers understand the needs of FASD stakeholders.
Too often people with FASD & their families face resistance in getting diagnosis & support
It shouldn’t be so hard
Like an icebreaker, each conversation creates an easier path for others who follow
The National Organisation for FASD, The Priory, High Street
Ware, Hertfordshire. SG12 9AL
England
Helpline: 0208 458 5951